We've had an interesting week here. Anni is going for her 4th blood draw this week on Monday. Last Saturday she had routine labs drawn, and the results that came back were a bit scary. Anni's platelets had dropped nearly in half (normal is around 150,000 and she runs usually around 80-90,000, but she was down to 54,000). With Anni's particular problems, that kind of drop conjures all sorts of scary thoughts. On top of that, all her other labs were worse than usual, too. So we spent the weekend worrying about all the dire things a sudden drop in platelets might portend.
On Monday we had her labs redone, to make sure that the platelets weren't still plummeting. I kept her home from playgroup, as low platelets leave her much more vulnerable to infection, and we waited anxiously to hear the results. And... platelets were back up to 90,000! So the most likely explanation was lab error on Saturday. Aaaaarrrrggghh! Well, it has to happen sometime, I guess.
We saw our regular pediatrician that Monday, too. He noted that her anemia, always present due to the fact that she is constantly losing blood in her stools from bleeding somewhere in her digestive tract, was slowly getting worse. So we decided to have her iron levels checked, and it turns out that she is severely iron-deficient. And I do mean severely
! So we're trying to figure out a way to work red meat into her diet, and of course we have her on a supplement now, too.
Our pediatrician also noticed that Anni's reflexes are a bit off, which can be an indication of neurological damage, so we're going to have her evaluated for that soon. If you remember, Anni had very high ammonia levels for quite a long time before transplant, and that can cause brain damage. So I guess it would not be a huge surprise if that were the case for her. However, it is clear that she doesn't have any kind of severe brain damage. She seems a mostly normal 3-yr-old, although she does seem to have a bit more problem concentrating and learning some things than other kids her age. However, this is very very hard to judge in children so young. Really, for what she's gone through, Anni is remarkably normal.
Today we went to the Wildlife Prairie State Park in Peoria, and they had a petting zoo there. Anni loved the bunnies, especially. The woman who owns the bunnies was there, and she was remarking that Anni was amazingly gentle for a child her age. And it's true that she has the softest touch for all the smallish creatures of the world. She even tried to rescue a bee that flew into her pool a few weeks ago, and got stung for her kindness, but she was still trying to save the bugs even after that.
Frankie is getting closer to walking all the time. She now takes pretty good steps when we are holding her arms, and she cruises along the furniture pretty well. She also dances now! She discovered Anni's singing Simba lion, and she giggles and bounces on her fat little legs to the tune of "Hakuna Matata" from the Lion King. Awfully cute! I hope I manage to get it on film before she stops doing it.
Speaking of movies, I'm going to take off the "Anni in the Pool" movie soon and replace it with one of Frankie. So if you wanted to save that movie, you should download it soon!