Home again. Deep sigh. Once it was clear that Annika could handle solid food, we skedaddled out of there. We rode Amtrak home together (I rode in the ambulance with her up to Chicago, so no car available). Annika was thrilled with Union Station and being surrounded by trains idling their impressively growly engines.
It's shocking how quickly things go from Pure Terror to Okey-Dokey. Jörg and I were both scared out of our wits on Monday evening. And it was clear that her docs in Chicago were worried, too. They sent an ambulance with 3 transport nurses from Children's, after first checking into a helicopter (grounded because of weather). As the nurses reported back to the hospital on our way up I-55, I realized that they had a PICU room ready for Annika, should she need it. When we got on the elevator at Children's and the nurse pushed the button for 6, the regular transplant floor, not the PICU floor, I breathed a sigh of relief.
So we're home for 11 days before returning for her shunt surgery. The sclerosing on Wednesday should hold her safe from any bleeds until the surgeon can finally get in there and try to fix the problem.
I will try to finish up all the little odds and ends I have sitting on my computer desktop, like the story of Frankie's first E.R. visit (the day before Anni's bleed) and the ongoing transformation of the girls' room. Meanwhile, I recommend reading the inaugural issue of The Whole Mom
(well done, Andrea
!), for which I contributed a short piece on organ donation and television.